PHG joins global alliance on genomics use
Global alliance aims to ensure the benefits of genomics sequencing for health are realised efficiently as possible
The PHG Foundation, a genomics and health policy think-tank based in Cambridge, UK, is the latest group to join a new global alliance that aims to ensure the benefits of genomics sequencing for health are realised efficiently as possible, and that patients and research participants sharing data are suitably protected.
Recent technological advances have created an explosion in genomic information and new opportunities for biomedical research as increasing levels of genomic and clinical data from individuals and populations around the world are amassed. However, at present there are no agreed standards on how best to share this data effectively and responsibly to optimise the potential for medical progress while providing suitable protection for the autonomy and privacy of those who have contributed their data.
To address this gap, the Global Alliance to Enable Responsible Sharing of Genomic and Clinical Data brings together more than 60 international organisations to develop and promote policy solutions, including harmonised regulatory frameworks to facilitate genomic and clinical data integration in a responsible manner.
PHG Foundation Director Dr Hilary Burton said: ‘We are delighted to join with other leading organisations in this new Global Alliance, working together to ensure that genomic data is optimally used to improve human health in a responsible manner.’
